 |
|---|
| Back (left to right): Philip (Sam) Deloria, Brett Lee Shelton, Nanibaa' Garrison, Terry Powell, Paul Oldham, Kim TallBear Front (left to right): Nadja Kanellopoulou, Jenny Reardon, Pilar N. Ossorio, Rebecca Tsosie, Brian Wynne, Laura Arbour |
Laura Arbour
Dr. Laura Arbour is an Associate Professor in the Department of Medical Genetics and the Island Medical Program at the University of British Columbia based in Victoria BC. Her clinical practice and research focuses on northern and aboriginal health issues as they pertain to genetics. Her research is directed towards conditions with a genetic component prevalent among Canadian Aboriginal populations, such as congenital heart defects in the Inuit of Nunavut; Long QT Syndrome in Northern British Columbia, primary biliary cirrhosis in the Pacific Northwest, and carnitine palmitoyl-transferase deficiency type 1A in the three Northern territories. Part of her work has entailed exploring the significance of carrying our genetic research with aboriginal communities. The work that she and others did, established the concept of “DNA on loan” which was subsequently adopted by the Canadian Institutes for Health Research: “Guidelines for Heath Research Involving Aboriginal People”.
Philip S. (Sam) Deloria
Philip Deloria is Director of the American Indian Graduate Center. He attended both undergraduate and law school at Yale University. Formerly, he was the Director of the American Indian Law Center, Inc., for over 35 years. Under Mr. Deloria's direction, the American Indian Law Center performed groundbreaking work in the analysis of Federal Indian policy, including helping to define the role of tribes in the federal system. The Law Center has also taken the lead in strengthening tribal government institutions. He will remain active as one of the premier analysts of Indian policy in the nation. He was a founder of the Commission on State-Tribal Relations in 1976. He is a member of the National Institutional Review Board for the protection of human subjects of research established by the Indian Health Service. Mr. Deloria was the founder and first Secretary-General of the World Council of Indigenous Peoples.
Nanibaa’ Garrison
Nanibaa’ Garrison is a Ph.D. Candidate in the Department of Genetics at Stanford University. Her dissertation work is on the genetics of human pigmentary variation. She is interested in identifying the genes and polymorphisms that contribute to normal variation in human eye, hair, and skin color. Her research interests include statistical approaches to measure genetic diversity, genome-wide ancestry testing, and the evolution of human pigmentation genes. In the past, she has published work in the American Journal of Human Genetics on the genetics of albinism in Navajo and in the Journal of Law Medicine and Ethics on the feasibility of using genetic markers in crime labs to search for relatives with a partial genetic match to a DNA sample from a crime scene.
Nanibaa’ is actively involved in the under-represented minority and Native American student populations at Stanford. She serves as Co-President of the Native American graduate student group, as coordinator of a Native American freshman mentoring program, and was a program assistant for the Stanford Summer Research Program for undergraduate minority students. Nanibaa’ will join the Center for Integration of Research on Genetics and Ethics (CIRGE) as a Post-Doctoral scholar at Stanford University in the spring of 2009. She earned her bachelors degree in molecular biology from the University of Arizona in 2003. She is Navajo (Diné) from Kayenta, AZ.
Nadja Kanellopoulou
Nadja Kanellopoulou is an academic lawyer who specializes in medical law, intellectual property and bioethics. She is based at the Arts & Humanities Research Council (AHRC) Research Centre for Intellectual Property and Technology Law, University of Edinburgh, Scotland, UK. Her doctoral research on “Group Rights in Biolaw - A Model Approach: examined legal, ethical and social aspects of group involvement in genomic research. She was previously a research fellow at the Economic & Social Research Council (ESRC) Genomics Forum working on several areas of genomics and health policy (e.g. gene banking, research commercialization, stem cell research regulation). She is interested in comparative studies of science, technology and public health, with particular focus on human tissue governance, property rights in the body, regulation of reproductive technologies and politics of expertise in health-related innovation.
Paul Oldham
Dr. Paul Oldham is a social anthropologist specializing in issues surrounding the human rights of indigenous peoples and biodiversity. Paul trained at Lancaster University (B.A. Hons.), Cambridge University (M.Phil.) and carried out doctoral research at the London School of Economics and Political Science. Paul has carried out extensive fieldwork with the Piaroa (Wothïha) in the Venezuelan Amazon and in 1993 worked to establish the Regional Organisation of Indigenous Peoples of Amazonas (ORPIA) for whom he continues to serve as an independent adviser. Between 1996 and 1999 Paul served as the Convenor of the Masters Programme in Environmental Issues at the Institute of Latin American Studies, University of London. In 1999 Paul turned to international policy work as a member of the Forest Peoples Programme and later at the Secretariat of the International Alliance of Indigenous and Tribal Peoples of the Tropical Forests. In 2002 Paul returned to academia as a member of the Anthropology Department at the University of Durham before joining CESAGen in 2003 to work on the flagship project Indigenous Peoples and Globalisation of Genomics in Amazonia. Dr. Oldham's research interests principally focus on the rights of indigenous peoples and the United Nations Convention on Biological Diversity. Dr. Oldham is a regular participant in events under the Convention and serves on the Advisory Board of the International Working Group for Indigenous Affairs (IWGIA) in relation to this issue.
Dr. Ossorio is Associate Professor of Law and Bioethics at the University of Wisconsin at Madison (tenured in the school of Law and the school of Medicine & Public Health).
Dr. Ossorio received her Ph.D. in Microbiology and Immunology from Stanford University in 1990. She went on to complete a post doctoral fellowship in Cell Biology at Yale University School of Medicine. In 1993 she served on the Ethics Working Group for President Clinton’s Health Care Reform Task Force. In 1994 she left the laboratory for a position with the Department of Energy’s Program on the Ethical, Legal and Social Implications (ELSI) of the Human Genome Project. She then went on to law school and received her JD from the University of California School of Law in 1997. During law school she received several awards for outstanding legal scholarship, and following graduation she was elected to the Order of the Coif, a national legal honor society.
Dr. Ossorio currently serves on the Director’s Advisory Council for the National Human Genome Research Institute (NHGRI), and as an advisor for the 1000 Genomes Project, the Human Microbiome Project, and for NHGRI-related tissue banking activities at Coriell. She currently serves on the Human Embryonic Stem Cell Research Advisory Committee for the Institute of Medicine (IOM), and she has served on several previous National Academy boards and committees. She is a fellow of the American Association for the Advancement of Science (AAAS). Her current research interests include: governance of large scale research projects; community consultation as an ethics method; issues at the intersection of race, research and justice; and ethical/legal issues in genome-wide genetics research (GWAS and large-scale sequencing).
Terry Powell
Terry Powell was born in Cordova, and grew up in Bethel and Kodiak, Alaska. She is a graduate of the University of Alaska, Fairbanks. Terry is the daughter of Bob and Esther Mulcahy, the eldest of five children and a lifelong Alaskan. Terry is a member of the Chugach Alaska Corporation and the Eyak Corporation. She has been a member of the Alaska Area Institutional Review Board since 1994, and currently serves as the IRB administrator. Her interests include research ethics, health care research, and bioethics. Terry has been married to her college sweetheart John for 28 years, and is the proud mother of two adult children. In July you will find Terry fishing for salmon on the Kenai River with her family.
Brett Lee Shelton
Brett Lee Shelton is a partner in the law firm Shelton and Ragona, LLC, of Louisville, Colorado, and he has practiced Indian Law since his graduation from Stanford in 1996. His work experience also includes national and international activism surrounding research in indigenous communities, work as a policy analyst for the National Indian Health Board, work with the Native American Rights Fund, and numerous radio interviews in the United States, Canada, and Aotearoa/New Zealand. His current work in research includes sitting on the Oglala Sioux Tribal Research Review Board in Pine Ridge, South Dakota from the start of this organization that was delegated power to review all research proposals involving tribal members as subjects or to be conducted within tribal jurisdiction.
Brian Wynne
Professor Brian Wynne is Associate Director of the Centre for Economic and Social Aspects of Genomics (CESAGen) at Lancaster University, U.K. He is a Professor of Science Studies and Research Director of the Centre for the Study of Environmental Change (CSEC) at Lancaster. He is also Principal Investigator on two CESAGen Flagship Projects, Plant Genomics and Indigenous Peoples.
His education includes MA (Natural Sciences, Cambridge 1968), PhD (Materials Science, Cambridge 1971), and MPhil (Sociology of Science, Edinburgh 1977). His work has covered technology and risk assessment, public risk perceptions, and public understanding of science, focusing on the relations between expert and lay knowledge and policy decision-making. He was an Inaugural Member of the Management Board and Scientific Committee of the European Environment Agency, (EEA), (1994-2000) and a Special Adviser to the House of Lords Science and Technology Select Committee Inquiry into Science and Society, (March 2000). He is also a member of the London Royal Society's Committee on Science in Society.